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Chronic Pain & Life

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Even my tired is tired....

5/19/2016

1 Comment

 
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Do you live with chronic fatigue? How does it impact your body and your ability to live your life? or does it?

For many, this list is all too familiar...but unless you live with this too...you may not understand. It's hard to imagine and even to comprehend what a life with this would be like.

Chronic fatigue is a fatigue that goes beyond simply being tired. Sleep is supposed to be restorative and restful...and we're supposed to wake up feeling refreshed and invigorated...but with chronic fatigue? that rarely ever happens.

We may often joke about how bad our memory is getting but really? it can be scary at times. To walk into a room and not remember why. To not be able to remember even the simple things like words, or dates, or even what's something is called or how to spell a word. What did you say earlier? What's your name again? We had plans today? I forgot.

With chronic fatigue, our bodies are often just so tired that every part of us hurts...we're worn out...feeling like we've been hit by a MAC truck. Muscles ache, heads hurt...our bodies are beyond hurting...and the one thing we need to help...we can't seem to get...Sleep! or at least the restful and restorative kind.

When I go to my doctor and my sleep is broken and my body is fatigued and burnt out...there is a quick check list that we go through...

am I eating regularly?
am I exercising?
am I avoiding caffeine and alcohol?
have I quit smoking yet? 
am I drinking plenty of water?
how is my stress level lately? 
what am I doing to help me? 

When you take a look at the list...how would you answer the questions? 

If you're feeling fatigued and it's the kind of tired that even sleep won't fix...what do you do? how do you help yourself? here are a few things to think about....
  • visualization for relaxation and mindful meditation can do a tired and hurting body a world of good...close your eyes and picture a soothing image (for me it's the beach) take the time to remember the sights, the sounds, the smells, picture yourself there and allow your body to relax...mind your breathing okay?! 
  • yoga, tai-chi are other gentle exercises you can do to help relax your body...have you tried them? even a good walk can help
  • journal your feelings and your thoughts too...but don't believe everything you think!
  • write yourself little notes to jog your memory, keep a calendar, use the planner on your phone...keep notes! 
  • sometimes when we're tired, we can be "short" with ourselves and with others...be mindful of how you're feeling and how you're behaving too okay? it's not their fault you're hurting and it's not yours either...use your words gently
  • even if you can't sleep...stretch out! relax your body, relax your mind, focus on your breathing
  • be mindful of the thoughts you're keeping and how you're talking to yourself - do not beat yourself up for feeling this way - do not put yourself down - just be nice to you okay? and be supportive too! you need your help 
  • check out nature...go for a walk, see the beach, listen to the birds...get out and get some fresh air
  • have you ever tried those CD's that have the sounds of a rain-forest? what about the whales and dolphins? or even a thunderstorm?
  • NAP!! I seriously wish there was a roll-over plan for all the childhood naps I refused as a child. If your body is tired...rest...sleep when your body needs it.

Sometimes this can be a "cycle" meaning it will end and we'll sleep better again...but sometimes it's not and we don't...so we have to do what we can to help ourselves through it. If your tired is the kind of tired sleep won't fix...what are you doing to help yourself? What can you do differently moving forward? We may not get the sleep we need...but there are things we can to help ourselves when struggling with this. Please take the time to find what works for you and as always...
take good care of you and your fatigue too

meme found at WellWisdom

1 Comment
Grace Ward
5/23/2016 03:03:47 pm

I just posted on my Facebook page, Even my tired is tired of being tired. Laughing as I posted it. So, I believe I'm coping a little better when I can make a joke of it instead of being brought to tears like I did only a year ago after I had hit yet another anniversary of having this disorder. I had sudden onset CFIDS April of 1998. It's been a long time since I've had a normal life. Well, my old normal. I still find myself having to tell people that I'm sick. But I have good days and bad days and other days it's somewhere in between. I haven't stopped smoking, drinking caffeine, drinking alcohol. Because when I have a really good day out of nowhere, for no reason, nothing I've done differently, I totally have to pull myself back from what I'd really like to do activity wise so that I don't crash after that good day. Pacing, is my main concern all of the time. Laying flat when I need it is something I carefully listen to now. I only push thru exhaustion and pain when I'm hurting so bad that nothing works. I'll find something that's going to get my adrenaline rushing, believe it or not, that helps me. For that moment. Then I crash for a few days. Exhausted. Sleeping forever and still being tired is a pain in itself. But everyone copes differently. I did withdraw from public for a long time. That's was after a car accident. Whiplash. Went into a severely bad case of CFIDS, along with more pain to add to what I already had was a lot to become accustomed to. I had to start pain medication again, and underwent many facet joint injections in my neck and lumbar which seemed to make the fatigue syndrome much worse and I tried explaining this to the pain drs. Who said it couldn't affect the CFIDS, they didn't really believe in my diagnosis to begin with, but I may have gotten through to them because it was quite visible in my eyes. Either way. I did go backwards, severely backwards and it was depressing after I'd been getting out of the house more often and doing more activities then to have the Full effect of CFIDS come back with a vengeance. I'd not been this sick in 10 years. I worked at a job part time for a couple of years but the Lyrica made me crazy and I had to go off of it, it did give me energy and killed the skin pain, but I almost took my own life, after a year of being of of it, FIBRO kicked in full force, couldn't work again. I could still function some, had a social life, till the wreck and the steroid injections started the CFIDS back. Immune system was going berserk again. Now that it's been 4 years since the last injection I believe my body is starting to function a tiny bit better. Still not good enough to work on any schedule at all. But this is the first spring in a long time that I'm not housebound. Laughing at myself and my life has helped me a lot. Not being so serious. Not stressing at every turn. Not wondering if I'm dying from something, realizing that I would not have any control over when or how I'm going to die has helped. Losing so many loved ones to death in the past 8 years has allowed me to let go and try to be happy for the good days and moments instead of worrying all the time, I can say #!=@ it. It's feels really good to say that too! Laughing has become my best medicine.

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    Tammy...

    is living life with chronic pain...doing the best I can with everyday. 

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