When you're invited out with friends or family what is your typical response? Are you hesitant to make plans because you don't know how you'll be feeling then? What if you say yes and then have to cancel?
Do you make excuses about your pain? What keeps you from accepting the invitation?
Now let me ask you this...does anyone know how they'll be feeling a week from now, a month from now, or even days from now? NO! No one knows how they'll be feeling, it's impossible to know. Sure, yes, you may know that you will feel pain, but you know what?...you feel some amount of pain every day...don't you? I do too...So why give up doing something you like because you "may" feel more pain that day?
There are things you can do to prepare for and manage your pain so that you can still be active in your life. Don't give up on the social aspects of your life because of your pain. Pain wins when you do that. It may take more energy than you're willing to give, but if you're not willing to do the work, you really can't complain either that you don't have a social life.
What can you do for you so you can be living the life you want? Don't give up on the things and people who make you smile...learn how to live with your pain, manage it and prepare for it, and live for you.
If you're going to feel pain everyday for the rest of your life...I think it's better to hurt doing the things that make you smile...at least then you're hurting for a reason than just because that's the way it is...live in the moments that allow you to forget your pain...even if only for a little while....just my opinion.